LIVING WELL WITH MUSCULAR DYSTROPHY, FOR ALL OF LIFE

At Prestige Nursing & Care we believe that those living with muscular dystrophy should be able to live a fulfilled and healthy life with the right support in place, tailored to their individual needs.

As an established provider we have been supporting individuals who require muscular dystrophy care to have an improved quality of life in their own homes and communities for over 75 years. We have been trusted by families up and down the country to provide care for all of life, evolving the level and type of care we provide to meet changing needs.

YOUR HOME IS BEST FOR MUSCULAR DYSTROPHY CARE

We know through our experience of supporting thousands of people and their families, that faced with the prospect of needing long-term care and support for muscular dystrophy that most people would prefer to stay in the safety, comfort and familiarity of their treasured home and not endure the disruption caused from a move away.

For many a move from home can cause much upset, worry and for some confusion. Having routines imposed on how you live, leaving your loved one, feeling isolated from family and friends or your local community are all common concerns experienced by those facing a move into a care home, specialist care setting or facing a prolonged stay in hospital.

Staying at home with the muscular dystrophy care you need means that you can continue to live life your way, whilst benefitting from one-to-one care provided by a competent and compassionate carer.  They will focus on providing care and support that enriches how you live, so you can have an improved quality of life with enhanced well-being.  Care at home enables you to remain independent and live your life with choice, whilst supporting you to successfully meet development milestones and for children and young adults, educational achievements.

WHAT IS MUSCULAR DYSTROPHY?

Muscular dystrophy is a group of genetic disorders that lead to progressive and irreversible weakness and loss of muscle mass resulting in severe muscle weakness and other related problems. It is progressive, so individuals may pass through different stages of the condition which require a different approach to types of treatment and support.

There are many types of muscular dystrophy each with their own cause.  Whilst symptoms can become evident in childhood, others are not apparent until middle age or older.  As it is a genetic condition those with muscular dystrophy in the family are a greater risk of developing it.

According to Muscular Dystrophy UK, the leading charity supporting those living with muscle wasting conditions there are over 70,000 people in the UK living with muscular dystrophy.   Symptoms vary depending on the type of muscular dystrophy you are living with, but common symptoms include difficulty walking, trouble breathing, a curved spine, restriction in joint motion and heart and organ problems.

Here we explore the most common forms of muscular dystrophy:

Duchenne type muscular dystrophy

This is the most common form of muscular dystrophy and is most common in boys.  Girls can be carriers but will only be mildly affected.  Symptoms will typically appear in early childhood and include falling frequently, difficulty jumping or running, trouble with rising or sitting up, larger than normal calf muscles, walking on toes, muscle stiffness and pain, learning disabilities and delayed growth.

Becker muscular dystrophy

Becker muscular dystrophy is similar to Duchenne muscular dystrophy, but signs and symptoms tend to be milder and progress more slowly.  Also, symptoms do not typically begin until the teenage years, but may occur when a person is in their mid-20’s and sometimes later.

Congenital muscular dystrophy

Congenital muscular dystrophy occurs between birth and the age of two.  Parents of a child will become aware that motor functions and muscle control are not developing normally or in the way they should.  Symptoms include poor motor control, muscle weakness, deformities in the feed, swallowing problems, inability to stand without support, speech and vision impairment and respiratory problems.

Myotonic dystrophy

Myotonic dystrophy causes myotonia which means a person is unable to relax muscles after they contract and can affect the central nervous system, heart, thyroid, eyes, facial muscles and gastrointestinal tract.

Muscular Dystrophy Care Banner_3

OUR APPROACH TO MUSCULAR DYSTROPHY CARE AT HOME

At Prestige Nursing & Care we provide a care and support package that enables you to live an enriched and fulfilled life in the safety and comfort of your own home.  No matter what age you are the muscular dystrophy care and support we provide will be guided by you tailored to your needs, giving you choice over how you live your life and the support you want. Our focus is for you to have as much enjoyment in life and our carer will support you with a care plan for muscular dystrophy that means you can enjoy activities and as much socialisation as you wish.  They will actively encourage you to learn new skills and engage new hobbies to make life stimulating and meaningful.

We work collaboratively with our clients and their families to develop a thorough care and support plan that accurately reflects a person’s holistic needs.  We also adopt a partnership approach to working with local authority partners, NHS services, multidisciplinary teams, therapists and other community bodies involved in a person’s care.  This means we are well-informed so we can provide continuity of care ensuring the right care is in place at the right time, whilst responding efficiently to changing needs and strengthening care provision when required.

Our carers will assist you with activities of daily living, ensuring your mobility needs are met including supporting you to use manual and power assisted wheelchairs.  They are trained to use ventilator systems to support breathing and respiratory function should you need this type of care.  They will be trained to use any equipment you need to increase your quality of life.

COMPETENT AND COMPASSIONATE MUSCULAR DYSTROPHY CARERS

When you choose Prestige Nursing & Care you can be reassured that the carer who cares for you or your loved one is experienced and expertly trained to provide the support you need, to the high standards you should expect.

If you are receiving complex care at home, the carers we choose to support your needs will have at least six months care or health sector experience before they come to care for you. In addition to completing our induction training programme, which goes above mandatory requirements they are trained by our registered nurses, clinical experts and other healthcare professionals involved in providing care to a specific client.  This hands-on nurse training means our carers can competently undertake a range of clinical interventions.

We adopt a bespoke approach to training that ensures our carers have the knowledge, skills and aptitude to deliver high-quality complex care that meets the very specific needs of our clients.  Through our unrivalled supervision and clinical oversight carers can adapt their approach and evolve the care they provide to meet changing needs.

We are very proud of our carers – each and every one of them is dedicated to providing compassionate, sensitive and dignified complex care at home that means our clients live a fulfilled and meaningful life, with independence and choice, for all of life.

Muscular Dystrophy Care Banner_2

CLINICAL EXCELLENCE AT PRESTIGE NURSING & CARE

Clinical excellence is at the heart of our culture and approach to service delivery at Prestige Nursing & Care. Our nurse-led home care service is monitored and supported by our experienced regional nursing teams. Led by our Head of Clinical Services who has over 30 years clinical experience, our team of qualified regional nurses are registered with the Nursing and Midwifery Council (NMC). Each holds a registered nursing qualification in at least one nursing specialism, including general adult nursing, learning and disability nursing, mental health nursing and children’s nursing. They enable the planning and delivery of safe and effective complex care to our clients, that is focused on ensuring the best possible care experience for our clients and their families.

Our nurses work in partnership with our care co-ordinators, carers, clients and families to identify specific care needs and plan the most appropriate care provision, whilst ensuring all our carers have the skills they need to deliver high standards of nurse-led care. They also provide families with on-going advice and continual support to ensure they feel reassured about the service we provide.

Giving Chris his life back with muscular dystrophy care at home

Chris is a 43-year-old man and has been living with muscular dystrophy for many …

Giving Chris his life back with muscular dystrophy care at home

Chris is a 43-year-old man and has been living with muscular dystrophy for many years.

Recently his lung collapsed and following tracheostomy he required 24-hour care.  Previously his mother and PA were able to care for him, but now that complex nurse-led care was needed around the clock it was impossible for them to provide the level of support he required.

Chris was determined to return home from hospital and live as independently as possible. His critical medical condition gave him bouts of anxiety that impacted how he felt, so he needed to trust his care team.  He worried about the loss of personal space from 24-hour care arrangement, so it was key that Chris and his carers got on well so they could be honest with each other about the level of care he wanted.

Prestige responded quickly with a team of carers to support Chris that would best meet his needs.  So that Chris could feel reassured and had continuity we happily employed Chris’ live-in PA of 8 years James, as part of the team. James was medically trained at the hospital with additional training from Prestige.  We provide another carer to deliver care in the morning and evenings, as well as a carer through the night to attend to his medical and personal needs.  When James takes a break, we also provide live-in care for the periods that James is away.  This approach enabled Chris to have control over his care team which was very important to him.

The complex care provided by the team at Prestige to support his muscular dystrophy symptoms included tracheostomy care, BPAP, suctioning, cough assist, ventilator and nebuliser support, handling and hoisting, as well as personal care and domestic care of his home.

Chris said: “The Prestige team are very good at judging characters – always putting the right people in for me – I really trust them. They give me much-need emotional as well as practical support.  My views are completely respected. I feel understood, my carers are more like friends – the trust and family feel mean absolutely everything to me. Prestige has given me back my independence. That’s priceless. I didn’t think what I have was possible.”

Chris now lives a fulfilled life at home with his dedicated team of carers and his mother is able to enjoy her life again, free from worry knowing that he is in safe hands. The outcome for Chris is positive. He leads an active social life and takes pride in his charity work as a befriender and tutor, supporting people with long-term health conditions.

Claire, Chris’ mum said: “This is my first experience of care. I cannot fault it.  I don’t have to worry now. The carers are all so well trained and they’ve always got time.”

The team at Prestige work in partnership with the local Clinical Commissioning Group that recommended Chris, who review his care plans. Chris chooses to have the district nurse change his tracheostomy once a month, as he likes the medical contact. He also has regular contact with the respiratory outreach nurse.  James says “they rely on us because we are with Chris every day. We’re all part of the same team, it’s like a jigsaw puzzle, it all just slots together”.

 

 

 

WHAT DOES OUR HOME CARE SERVICE INCLUDE FOR THOSE LIVING WITH MUSCULAR DYSTROPHY?

CONDITION-LED CARE

We provide specialist care of conditions that affect a person’s ability to live well. Whatever specialist condition you are living with, our carers are supported by our expert nursing and clinical teams to ensure you live a life with improved quality and health outcomes, whilst maintaining choice and independence.

EXPERT NURSE-LED CARE

Our service is nurse-led and carers are trained in the clinical skills required to provide care and support for complex, terminal and other medical conditions that impact how you live your life. They are supported by an experienced, dedicated registered nurse who undertakes regular competency assessments to ensure high standards of care delivery and provides clinical monitoring, supervision and support. With this leadership and oversight carers can perform many delegated healthcare tasks and clinical interventions at home.

CONSIDERATE COMPANIONSHIP

Companionship is at the forefront of everything we do. Our carers will support your social, emotional and psychological needs as well as your care needs so you can live a fulfilled life, for all of life. At Prestige Nursing & Care we will match you with the most suitable carers so that interests and backgrounds are aligned as we know this makes for an enriched and enjoyable life. Our carers will support you to maintain friendships and social interests, whilst ensuring you continue to be connected to things you care about in your local community.

SENSITIVE PERSONAL CARE

Our carers are trained to provide personal care in a way that is compassionate, respectful and sensitive. They will support you with the tasks of bathing, personal hygiene, dressing and continence care, whilst ensuring you are always looking and feeling your best as we know how this builds self-esteem.

SAFE MOBILITY AT HOME

Our carers are trained to support safe mobility in and around the home – everything from transferring and positioning to minimising falls through effective assessment of risk, to facilitating and supporting safe movement. They will effectively assess risks and work with clients who wish to take ‘positive risks’ so that they can have as much independence as possible and live life as you wish.

EFFICIENT MEDICATION ADMINISTRATION

For the majority of our clients ensuring medications are managed effectively is critical to their health and well-being. Our carers can manage complex medication regimes, providing sensitive reminders and collecting medication from the pharmacy.

MEAL PREPARATION AND COOKING

Our carers will help by planning your meals, preparing and cooking your food for you, or with you whilst supporting you to eat if needed. They will focus on ensuring the food you eat meets your health and nutritional needs, whilst maintaining your preferences and choices.

HOUSEHOLD TASKS IN AND OUT OF THE HOME

Our carers will make sure your house is clean, laundry is done as required and will undertake any shopping or errands outside the home. They will also happily provide care to your beloved pet.

HOME FROM HOSPITAL

We work closely with community nursing teams and hospital discharge planners to support a swift and effective discharge from hospital ensuring the right care and support is in place. Our high-quality, home care service delivered by trained and experienced carers and overseen by clinical experts is focused on achieving outcomes that significantly reduce hospital admissions.

PALLIATIVE / END-OF-LIFE CARE

Our compassionate and competent carers are there to support those who need palliative or end-of-life care. They are trained to ensure an individual’s medical, physical, psychological, social and spiritual well-being is enhanced, whilst ensuring a person’s wishes, choices and preferences are met until the very end-of-life.

HOW WE PROVIDE CARE AT HOME FOR THOSE LIVING WITH MUSCULAR DYSTROPHY

Our trusted and established care at home service can be provided in the following ways for someone living with muscular dystrophy:

  • Hourly care or visiting care, as it is sometimes referred is for those who need care and support with tasks of daily living or clinical care at certain times during the day. Care at home can be provided from a 30 minute visit, to as many hours/visits throughout the day you require, one day or several days of the week depending on your care and support needs. For those who have complex needs, hourly care can be provided over a 24-hour period.
  • Live-in care for when a permanent care arrangement is needed with greater levels of support around the clock to ensure a person can live well at home. Through our family of leading home care brands in the UK, we are able to offer award-winning live-in care rated ‘Outstanding’ by The Care Quality Commission (CQC) from The Good Care Group.
  • Respite care for those needing a short-term arrangement after hospital discharge to rehabilitate or when a family carer needs a break from their caring role. It is also an ideal service for families who wish to assess whether care at home is the right care choice for them.
Clinical Excellence Banner_2

CARE MANAGEMENT LOCAL TO YOU

Our responsive and reliable muscular dystrophy care service local to you means we can put care and support in place quickly and in many cases within 24-hours.   Depending on your needs a comprehensive assessment will be conducted by either a registered nurse or our local care expert.  We can conduct the assessment at your home, in hospital or in any specialist care setting if you are awaiting discharge back to your own home, enabling a plan of care and support to be developed that meets all your needs.

Our approach to care planning, whether it is for an hourly care service respite care or a permanent live-in care arrangement ensures we capture all your preferences and wishes so you can live a contented life in the comfort of your own home.  We take time to find the carer that would best meet your care and support needs, making sure they are closely aligned with how you wish to live your life. Once care is in place, our local teams made up of care and clinical experts provide you, your family and our carer with an abundance of on-going support, giving you peace of mind that you or your loved one is receiving the very best home care.

QUALITY ASSURANCE THROUGH REGULATED SERVICE PROVISION

Prestige Nursing & Care is not an agency.  Unlike a home care agency, we provide a fully managed and regulated care at home service, which means our clients, their families and our professional partners can be reassured that the care and support we provide those living with muscular dystrophy is of the very highest quality.

Our service is inspected by the Care Quality Commission (CQC) in England and the Scottish Care Inspectorate (SCI) in Scotland.  We are proud that 96% of our inspected services have been rated as providing a ‘Good’ service, with 4% rated ‘Outstanding’ and all our services in Scotland have been awarded a five-star rating.

Our accredited service for complex care, which meets local and national quality standards and ensures a consistent approach to the care we provide, provides peace of mind and reassurance that our service if of the highest quality.

COST OF MUSCULAR DYSTROPHY CARE

The cost of muscular dystrophy care is dependent on the level of care and support you require.  If you are receiving our hourly muscular dystrophy care the overall cost will be determined by the number of visits and frequency of visits to you at home. Our experts will conduct a comprehensive assessment of your needs at your home, or in hospital if you are awaiting discharge to truly understand what you need and therefore how much muscular dystrophy care at home will cost.

We know that our cost of muscular dystrophy care is very competitive when compared with other home care providers.  It is worth noting that when comparing the cost of home care with a care package in a care home, that the fee you pay for home care is actually for the care and support you receive.  In a care home your weekly fee mainly covers your accommodation, food and social activities with the care package being only a small part of what you pay.

You may be entitled to either healthcare funding, social care funding or Government funding to contribute to the cost of muscular dystrophy home care.  If you are faced with having to finance your own home care (known as self-funding care), there are initiatives available to you, including care fees annuities or equity release schemes that could provide the funds you need for your care and support.

Read More

RESPONSIVE LOCAL TEAMS WITH NATIONWIDE COVERAGE

We are providing care and support to those needing muscular dystrophy care in over 30 locations in the heart of communities across England and Scotland.  The fully managed service we provide is highly responsive and our experts local to you can put care packages in place quickly, working in collaboration with local healthcare professionals, multidisciplinary teams, therapeutic care providers and other community support services.  We know this holistic approach ensures our clients get the best out of life, for all of life.

Find a care service near you

Find out why our clients choose Prestige Nursing & Care for a high quality, responsive home care service.

Complex Care FAQs

WHAT IS COMPLEX CARE?

Complex care or nurse-led care, as it is sometimes referred to is nursing care which is led and managed by a highly experienced registered nurse. The registered nurse will guide and oversee the clinical care provided by a trained carer and in some cases the nurse will provide the care too.  Nursing home care requires specialist expertise and knowledge to ensure high-quality care is provided in relation to all aspects of care, including clinical components, ensuring it is both safe and effective, whilst positively enhancing the experience for the person receiving care.  The nursing home care service provided must be able to identify changes in health and evolve the care provided as needs change.

We are experts in the specialist care of conditions that impact a person’s ability to live well, including neurological conditions like dementia, Parkinson’s or motor neurone disease, physical disabilities such as muscular dystrophy and cerebral palsy, and palliative/end-of-life care for those that are nearing the end-of-life.   We provide nurse-led clinical interventions including respiratory and airway support, like tracheostomy management, feeding support including PEG feeding and stoma and catheter care.

Complex care includes:

  • Monitoring health and recording progress
  • Working in collaboration with other healthcare professionals by adopting a multi-disciplinary approach to care that improves outcomes
  • Recording symptoms
  • Medications management and administration
  • Providing advice and support
  • Educating about how to manage illness
HOW DO I ARRANGE CARE?

We are here to help you and your family every step of the way and you can call us on 0808 239 1525 and one of our friendly care advisors will provide information, guidance and advice on your care options. 

Or to find the nearest Prestige Nursing & Care service to you, use the search function on our website.

WHAT CLINICAL SERVICES CAN YOU PROVIDE?

Our established nurse-led service cares for generations of people – from babies who require paediatric care at home , to children with a learning disabilities through to adolescents who have had a life-changing accident, to adults and older people living with neurological conditions or other physical disabilities.

Our care aims to facilitate independence, social interaction and emotional well-being whilst supporting people to fulfil their potential and live a purposeful and meaningful life.

We are experts in the specialist care of conditions that impact a person’s ability to live well, including neurological conditions like dementia, Parkinson’s or motor neurone disease, physical disabilities such as muscular dystrophy and cerebral palsy, and palliative/end-of-life care for those that are nearing the end-of-life.  We provide nurse-led clinical interventions including respiratory and airway support, like tracheostomy management, feeding support including PEG feeding and stoma and catheter care.

WHAT CONDITITONS DO YOU CARE FOR?

We are experts in the specialist care of conditions that impact a person’s ability to live well, including:

  • Arthritis
  • Acquired brain injury (ABI)
  • Bariatric care
  • Cancer
  • Cerebral palsy
  • Dementia
  • Diabetes
  • Knee and hip replacement after-care
  • Learning disabilities
  • Mobility/frailty
  • Motor neurone disease
  • Multiple Sclerosis (MS)
  • Muscular dystrophy
  • Palliative /end-of-life
  • Parkinson’s
  • Spina bifida
  • Spinal injury
  • Stroke
WHAT IS YOUR CLINICAL STRUCTURE?

Clinical excellence is at the heart of our culture and approach to service delivery at Prestige Nursing & Care. Our complex care and condition-led care services are led, developed, monitored and supported by our experienced registered nurses who, as a team have a wealth of experience with a diverse range of nursing specialisms.

Our Head of Clinical Services is a registered nurse and children’s nurse with extensive clinical experience spanning 30 years.  Providing professional and operational leadership to all Prestige nursing teams, our Head of Clinical Services is responsible for ensuring we provide a high-quality home care service, that is safe and effective and delivers the best possible care experience to our clients and their families.

Within the Clinical Services team we have Regional Clinical Leads who are qualified nurses and provide professional leadership and operational management to the registered nursing workforce, across a specified region.   Working alongside our expert regional nurse team they support all aspects of complex care provision ensuring every client receives compassionate high-quality care which is evidence based and aligned with national best practice guidance.

Our team of regional registered nurses hold a variety of nursing qualifications including general nursing, learning disability nursing, registered mental health nurses and registered children’s nurses.  They enable the planning and delivery of safe and high-quality complex care provision to our clients.  Our nurses work in partnership with healthcare professionals and families to identify specific care needs and plan the most appropriate care provision, whilst ensuring all our carers have the skills they need to deliver high standards of nursing care.  They provide families with on-going advice and continual support to ensure they feel reassured about the service we provide.

HOW DO YOU MANAGE COMPLEX CARE AT HOME?

Our fully managed service is led by our expert clinical services team who have a wealth of nursing experience. We work collaboratively with our clients and their families to develop a thorough care and support plan that accurately reflects a person’s holistic needs.  We also adopt a partnership approach to working with local authority partners, NHS services, multidisciplinary teams, therapists and other community bodies involved in a person’s care.  This means we are well-informed so we can provide continuity of care ensuring the right care is in place at the right time, whilst responding efficiently to changing needs and strengthening care provision when required.

WHAT GOVERNANCE/REGISTRATIONS DO YOU HAVE?

We provide a fully managed and regulated care at home service, which means our clients, their families and our professional partners can be reassured that the care and support we provide is of the very highest quality. Our service is inspected by the Care Quality Commission (CQC) in England and the Care Inspectorate (SCI) in Scotland.  In England we hold registration for Treatment of Disease, Disorder or Injury (TDDI), a registration not all home care providers hold.

We are proud that 96% of our inspected services have been rated as providing a ‘Good’ service, with 4% rated ‘Outstanding’ and our services in Scotland have been awarded a five-star rating.

We have developed our own bespoke accreditation tool which means we are continually monitoring and measuring the quality and consistency of our complex care services for children and young adults to ensure it meets required local and national standards of high-quality care provision.  We know this provides much-needed assurance to our clients, their families and other professionals involved that they are receiving the very best care and allows us to further improve what we do.

WHAT TYPE OF CARE DO I NEED?

To enable us to understand the type of care you would need, our experienced registered nurse local to you will conduct a comprehensive assessment of your needs at home, in hospital or in any specialist care setting if you are awaiting discharge back to your own home enabling package of care to be created that meets your needs.

Our approach to care planning, whether it is for a respite service or a permanent arrangement for hourly care or live-in care ensures we capture all your preferences and wishes so you can live a contented life in the comfort of your own home, with independence.

We take time to find the carer that would best meet your care and support needs, making sure they are closely aligned with how you wish to live your life. Once care is in place, our local teams made up of care and clinical experts provide you, your family and our carer with an abundance of on-going support, giving you reassurance that you or your loved one is receiving the very best care at home.

We are here to help you and your family every step of the way and you can call us on 0808 239 1525 and one of our friendly care advisors will provide information, guidance and advice on your care options.   Or to arrange an assessment contact our service near you.

WILL I HAVE A REGULAR CARER?

Yes. As part of our considered care planning process we take time to match a team of carers that best meets a clients’ specific needs. We ensure that the care team that cares for you or your loved one has the skills and experience to meet your care and support needs, but we also make sure that they share similar interests, hobbies and values.

You can be rest assured that you or your loved one will receive care all year round from a team of well-matched, competent and compassionate carers who truly understand your needs and how you wish to live your life.  We know our approach provides consistency and continuity of care and leads to a stimulating and enjoyable life for our clients.

WHAT DOES A COMPLEX CARER DO?

A competent complex carer will provide the following specialist tasks:

  • Home ventilation and respiratory support
  • Assistance with medicines that control pain
  • Tracheostomy care
  • PEG gastrostomy feeding
  • Medication administration
  • Bowel management
  • Continence care
  • Epilepsy management

We work collaboratively with other healthcare professionals, multidisciplinary teams, commissioning groups and other therapy providers involved in our client’s care to ensure an integrated and holistic approach to nursing care we provide.

Family involvement is central to our approach to providing nurse-led care at home and our care teams will ensure they receive high levels of support, as much as they want, as and when they need it.  The level of care provided is planned in partnership with everyone involved in a client’s care as we know through our experience this ensures goals are reached and outcomes are improved.

HOW QUICKLY CAN CARE BE SET UP?

Our responsive and reliable local care at home service means we can put care and support in place quickly, and in many cases within 24-hours. We are providing a fully managed care and support service in over 30 locations in the heart of communities across England and Scotland, so our experts local to you can put care packages in place quickly, working in collaboration with local healthcare professionals who are involved in your care.

HOW WILL YOU MATCH THE MOST SUITABLE CARERS TO MEET MY NEEDS?

As part of our considered care planning process we take time to match a team of carers that best meets a clients’ specific needs. We ensure that the care team who cares for you or your loved one has the skills and experience to meet your care and support needs, but we also make sure that they share similar interests, hobbies and values.  We this leads to a stimulating and enjoyable life for our clients.

HOW MUCH EXPERIENCE DO YOU CARERS HAVE AND HOW DO YOU TRAIN THEM?

When you choose Prestige Nursing & Care you can be reassured that the carer that cares for you or your loved one is experienced and expertly trained to provide the support you need, to the high standards you should expect. We require carers who join us to have at least six months care or health sector experience and all carers complete our induction training programme, which goes above mandatory requirements.

Before a carer is able to provide complex care at home they are trained by our registered nurses, clinical experts and other healthcare professionals involved in providing care to a specific client, which includes hands-on nurse training so they can competently undertake a range of clinical interventions.

We adopt a bespoke approach to training that ensures our carers have the knowledge, skills and aptitude to deliver high-quality complex care that meets the very specific needs of our clients.  Through our unrivalled supervision and clinical oversight carers can adapt their approach and evolve the care they provide to meet changing needs.

We are very proud of our carers – each and every one of them is dedicated to providing compassionate, sensitive and dignified complex care at home that means our clients live a fulfilled and meaningful life, with independence and choice, for all of life.

WHAT IS A CARE AND SUPPORT PLAN?

A care and support plan is a written statement created by our experienced registered nurse following our thorough assessment of your needs. It outlines all your specific care needs but also covers all your choices and preferences in how you live your life.

The care plan identifies specific care and support tasks involved in your care detailing when, where and how they should be carried out and by whom.  It ensures you get the right care, in the right time and in the right place – your home.  Our registered nurse will conduct a comprehensive review of the plan working with your care to team to ensure it always accurately reflects your needs and you achieve your outcomes.

WHAT SHOULD I CONSIDER WHEN SELECTING COMPLEX CARE PROVIDER?

When choosing a care provider, there are several factors that are worth considering:

Regulated service provider or agency

It is really important when considering a home care provider that you recognise the differences between a regulated service provider, whose service is registered and inspected by the Government and an agency, who are unlikely to provide a regulated service and whose carers will be self-employed.  Care services in England are regulated by the Care Quality Commission (CQC) and in Scotland by the Care Inspectorate.

Quality assurance through regulated service provision

Prestige Nursing & Care is not an agency.  Unlike a home care agency, we provide a fully regulated home care service, which means our clients, their families and our professional partners can be reassured that the care and support we provide is of the very highest quality.

Our service is inspected by the Care Quality Commission (CQC) in England and the Care Inspectorate (SCI) in Scotland.  We are proud that 96% of our inspected services in England have been rated as providing a ‘Good’ service, with 4% rated ‘Outstanding’ and all our services in Scotland have been awarded a five-star rating.

Fully managed service or introduction agency

When arranging care at home you will need to consider how much involvement you want in managing the care you receive.  With a fully managed service, like Prestige Nursing & Care you will benefit from carers that are employed, expertly trained to meet specific client needs and high levels of management and clinical oversight to ensure you receive a high quality service.

If you choose an introduction agency, the carers are self-employed and once introduced to you they will need to be managed, supervised and paid for by the family.  If they need time off or holiday, then you will need to arrange cover which is not always easy and can cause issues with continuity of care for you or your loved one.  We know many families like the peace of mind and reassurance, that comes from knowing their loved one is getting quality and continuity of care that comes from using a fully managed service provider.

The value of recommendations

Many families who are arranging care at home for a loved one or family member, will seek recommendations from those they know.  It is also worth consulting your local authority social services team to see who they consider to be a reputable provider, as they will have vetted the provider to meet essential standards of quality and compliance.

There are also rate and review websites that cover care providers in the UK.  Homecare.co.uk and NHS Choices receive online reviews from those who have used provider services and the UKHCA (United Kingdom Home Care Association) will also have a list of reputable providers for you to choose from.

HOW MUCH DOES COMPLEX CARE COST?

The cost of complex care is dependent on the level of care and support you require. If you are receiving our hourly care at home service the overall cost will be determined by the number of visits and frequency of visits to you at home.

Our experts will conduct a comprehensive assessment of your needs at your home, or in hospital if you are awaiting discharge to truly understand what you need and therefore how much care at home will cost.

We know that the cost of our professional complex care is very competitive when compared with other providers.  It is worth noting that when comparing the cost of home care with a care package in a care home, that the fee you pay for complex care is actually for the care and support you receive.  In a care home your weekly fee mainly covers your accommodation, food and social activities with the care package being only a small part of what you pay.

You may be entitled to either healthcare funding, social care funding or Government funding to contribute to the cost of care.  If you are faced with having to finance your own home care (known as self-funding care), there are initiatives available to you, including care fees annuities or equity release schemes that could provide the funds you need for your care and support.

HOW IS CARE FUNDED IN ENGLAND?

At Prestige Nursing & Care we have been helping families up and down the country to understand how they can finance care, whether that is through funding available to them or financing initiatives that can contribute to the cost of care. If you are living with a complex need and require nurse-led care or paediatric care you may be entitled to healthcare funding to receive this care at home.

If you need care and support for day-to-day tasks and activities to enable you to maintain independence, then you may be entitled to social care funding to get the help you need.  This is means tested funding so the level of funding will depend on your care needs and your personal circumstances.

Depending on your needs you may be eligible for funding through Government initiatives, like the Disability Living Allowance (DLA).

For many families however, they find they do not qualify for any funding to contribute to their overall cost of care and are faced with financing care themselves – this is referred to as private pay or self-funding care.  You may wish to consider a care fees annuity or an equity release scheme if you are self-funding your care as they can considerably contribute to the cost of home care.

HOW IS CARE FUNDED IN SCOTLAND?

At Prestige Nursing & Care we have been helping families throughout Scotland to understand how they can finance care, whether that is through funding available to them or financing initiatives that can contribute to the cost of care. In Scotland personal and/or nursing care is funded to all adults in the country over the age of 65 who have been assessed by their local authority as eligible for these services.  Personal care refers to anything done for you that is personal in nature.  This may include tasks relating to personal hygiene, bathing/showring, shaving and oral hygiene, nail care, continence care, catheter and stoma care, skincare, laundry and bed changing.  Read more about care funding in Scotland.

For many families however, they find they do not qualify for any funding to contribute to their overall cost of care and are faced with financing care themselves – this is referred to as private pay or self-funding care.  You may wish to consider a care fees annuity or an equity release scheme if you are self-funding your care as they can considerably contribute to the cost of home care.

WHAT HAPPENS IF THE CARER IS UNEXPECTEDLY UNWELL AND UNABLE TO CARE FOR ME?

As we have a team of carers assigned to care for you, one of the other members of your care team will be able to step in offering continuity of care.

HOW DO I PAY FOR MY CARE SERVICE?

We provide a monthly invoice to you for care services provided based on the package of care we agree with you when we start the service. Most of our clients find that paying a monthly direct debit is the most convenient way to pay for their care.

HOW WILL MY CARERS GET INTO MY HOME IF I AM UNABLE TO ANSWER THE DOOR?

If you cannot answer the door to your care team, we ask that you install a key box safe outside your home that they can gain access. The code would remain confidential between our office and the care team to ensure your security and safety.

WHO COULD HELP ME FIND A REGULATED PROVIDER?

If you are looking for a regulated service provider like Prestige Nursing & Care in England, you will be able to search for these providers on the Care Quality Commission (CQC) website. In Scotland you will need to visit the Care Inspectorate website.

WHAT HAPPENS IN A MEDICAL EMERGENCY? WILL THE CARER STAY WITH ME UNTIL HELP COMES?

Absolutely. Our carer will always remain with you to ensure you get the care you need in an emergency. If you need to go to hospital, they will come with you to support you.  The carer will liaise with your family and any other health professionals involved in your care to make sure everyone is informed of the situation and you have the reassurance you need.

WHAT HAPPENS ON WEEKENDS AND BANK HOLIDAYS?

Our fully managed service is provided 24/7, 365 days a year so you can be reassured that you or your loved one will receive care all year round from a team of well-matched, competent and compassionate carers who truly understand your needs and how you wish to live your life.

USEFUL RESOURCES

There are several organisations and charities in the UK that support those who are living with muscular dystrophy, including Muscular Dystrophy UK, the Harrison Fund, Duchenne UK and the Muscular Dystrophy Association.

We are here to take your call and will provide impartial support and guidance – contact our friendly care experts today to discuss your muscular dystrophy care and support needs.


0808 239 1525